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nEUroped is for children with rare nervous system disorders.
The Network brings together patients and their families, patient organisations, research groups, and other interested parties across Europe.
nEUroped is currently co-funded by the European Union Public Health Program 2007 in a project aiming to improve diagnosis, management and dissemination of information on a number of rare nervous system disorders in children: Alternating Hemiplegia of Childhood; Narcolepsy; Rare surgically treatable epileptic disorders : Sturge-Weber; Hypothalamic hamartomas; Landau-Kleffner; Cerebellar Hamartomas; Rasmussen syndrome
The project objectives are to Establish the Network and Integrate Patients; Identify main research and health care and social needs of selected diseases utilizing questionnaires for data collection, surveys for Patients and patient's Registries; Review and analyze data and develop and disseminate recommendations in the form of Guidelines on these diseases and Ensure highest ethical standards for the project and the Network.
Events: Extended Network Meeting 21-23 November 2010
Report Patient Network
Report Conference day1
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News
Newsletter_8
This Website arises from the nEUroped project which has received funding from the European Union, in the framework of the Public Health Programme.
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